© 2024 Zebra Hearts Foundation
Run Like a Zebra for EDS
Saturday, May 18, 2024
Run Like a Zebra for EDS is an annual race that was
started in order to help those with Ehlers-Danlos
Syndrome. Funds will also go to support the Zebra
International Day of the Zebra
On January 31 of every year, aims to raise awareness
about the striped mammal and its endangered condition.
We celebrate our own zebra dazzle: individuals living
with Ehlers-Danlos syndromes (EDS) and hypermobility
spectrum disorders (HSD).
Rare Disease Day
February 29, 2024
Raising awareness and generating change for the 300
million people worldwide living with a rare disease,
their families and carers.
Rare Disease Awareness Dates
February was officially declared Rare Disease Month in
2008 with February having the “rarest” number of
May is EDS Awareness Month.
June is Myasthenia Gravis Awareness Month.