© 2024 Zebra Hearts Foundation
Events
Run Like a Zebra for EDS
Florence, WI
Saturday, July 27, 2024
Run Like a Zebra for EDS is an annual race that
was started in order to help those with Ehlers-
Danlos Syndrome. Funds will also go to support
the Zebra Hearts Foundation.
Learn more
International Day of the Zebra
January 31
On January 31 of every year, aims to raise awareness
about the striped mammal and its endangered
condition. We celebrate our own zebra dazzle:
individuals living with Ehlers-Danlos syndromes
(EDS) and hypermobility spectrum disorders (HSD).
Learn more
Rare Disease Day
Last day of February
Raising awareness and generating change for the
300 million people worldwide living with a rare
disease, their families and carers.
Learn more
Rare Disease Awareness Dates
•
February was officially declared Rare Disease Month in 2008 with February having the “rarest” number of
days.
•
May is EDS Awareness Month.
•
June is Myasthenia Gravis Awareness Month.