© 2023 Zebra Hearts Foundation
Events
Run Like a Zebra for EDS
Florence, WI
Saturday, May 18, 2024
Run Like a Zebra for EDS is an annual race that
was started in order to help those with Ehlers-
Danlos Syndrome. Funds will also go to support
the Zebra Hearts Foundation.
Learn more
International Day of the Zebra
January 31
On this day, we celebrate our own zebra dazzle:
individuals living with Ehlers-Danlos syndromes
(EDS) and hypermobility spectrum disorders (HSD).
Learn more
Rare Disease Day
February 28
Raising awareness and generating change for the
300 million people worldwide living with a rare
disease, their families and carers.
Learn more
Rare Disease Awareness Dates
•
February was officially declared Rare Disease Month in 2008 with February having the “rarest” number of
days.
•
May is EDS Awareness Month.
•
June is Myasthenia Gravis Awareness Month.