Non Profit Organizations that Zebra Hearts Foundation Supports

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Lower Michigan, Southern Michigan, Detroit, Crystal Falls, MI, Rockford, IL, Florence, WI, patient advocate, treatment education, rare disease treatment, provide education for health care professionals, patient support, advocacy, research, resources, comm

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Non-Profits

EDS Awareness We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… Visit their website

Cure Rare Disease Developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Visit their website

Rare Village Foundation Our goal is to empower families as treatment advocates by providing education, connections and tools to help them simplify their rare disease treatment work. Visit their website

Myasthenia Gravis Foundation Of America Our missions include: creating a robust resource network to improve access and enhance lives for those with MG, supporting promising research and improving time to diagnosis and care for MG. Visit their website

Conquer MG We provide patient support and education, raise MG awareness, provide education for health care professionals, and raise funds for vital medical research. Visit their website

National Organization for Rare Disorders NORD, along with its 300+ patient organization members, is committed to the identification and cure of rare disorders through programs of education, advocacy, and patient services. Visit their website

The Ehlers-Danlos Society We are proudly working to provide global learning conferences, collaborative research and education initiatives, advocacy, community-building, and care for the EDS and HSD population. Visit their website

Patient Worthy Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories. Visit their website

Think Genetic Our goal is to help speed time to diagnosis and reduce chances of diagnostic error. To get started, browse our genetic diseases or find diseases by symptoms. Visit their website

Limited Mobility Solutions For many of us, using voice commands to turn on lights or change channels on our TV is a luxury, but for those with limited mobility, voice activated solutions such as these can be life changing, both for the individual as well as their caregivers. Visit their website

U.S. Pain Foundation U.S. Pain is committed to improving the lives of people with pain by challenging social stigma and breaking down barriers to care. Visit their website

National Foundation for Ectodermal Dysplasias Put an end to a loophole that allows health insurance to deny benefits for necessary medical care. Help advocate for the Ensuring Lasting Smiles Act. Visit their website