© 2022 Zebra Hearts Foundation
Website Design by North Country Website Design
906-875-2015

Non-Profits

Strengthening EDS Connections Our missions is to provide support and resources to patients and medical professionals affected by Ehlers-Danlos Syndromes (EDS) and related conditions via education and research. Visit their website
EDS Awareness We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… Visit their website
Cure Rare Disease Developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Visit their website
Rare Village Foundation Our goal is to empower families as treatment advocates by providing education, connections and tools to help them simplify their rare disease treatment work. Visit their website
Myasthenia Gravis Foundation Of America Our missions include: creating a robust resource network to improve access and enhance lives for those with MG, supporting promising research and improving time to diagnosis and care for MG. Visit their website
Conquer MG We provide patient support and education, raise MG awareness, provide education for health care professionals, and raise funds for vital medical research. Visit their website
National Organization for Rare Disorders NORD, along with its 300+ patient organization members, is committed to the identification and cure of rare disorders through programs of education, advocacy, and patient services. Visit their website
The Ehlers-Danlos Society We are proudly working to provide global learning conferences, collaborative research and education initiatives, advocacy, community-building, and care for the EDS and HSD population. Visit their website
Patient Worthy Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories. Visit their website
Think Genetic Our goal is to help speed time to diagnosis and reduce chances of diagnostic error. To get started, browse our genetic diseases or find diseases by symptoms. Visit their website
Limited Mobility Solutions For many of us, using voice commands to turn on lights or change channels on our TV is a luxury, but for those with limited mobility, voice activated solutions such as these can be life changing, both for the individual as well as their caregivers. Visit their website
U.S. Pain Foundation U.S. Pain is committed to improving the lives of people with pain by challenging social stigma and breaking down barriers to care. Visit their website
© 2022 Zebra Hearts Foundation
Website Design by North Country Website Design

Non-Profits

Strengthening EDS Connections Our missions is to provide support and resources to patients and medical professionals affected by Ehlers- Danlos Syndromes (EDS) and related conditions via education and research. Visit their website
EDS Awareness We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… Visit their website
Cure Rare Disease Developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Visit their website
Rare Village Foundation Our goal is to empower families as treatment advocates by providing education, connections and tools to help them simplify their rare disease treatment work. Visit their website
Myasthenia Gravis Foundation Of America Our missions include: creating a robust resource network to improve access and enhance lives for those with MG, supporting promising research and improving time to diagnosis and care for MG. Visit their website
Conquer MG We provide patient support and education, raise MG awareness, provide education for health care professionals, and raise funds for vital medical research. Visit their website
National Organization for Rare Disorders NORD, along with its 300+ patient organization members, is committed to the identification and cure of rare disorders through programs of education, advocacy, and patient services. Visit their website
The Ehlers-Danlos Society We are proudly working to provide global learning conferences, collaborative research and education initiatives, advocacy, community-building, and care for the EDS and HSD population. Visit their website
Patient Worthy Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories. Visit their website
Think Genetic Our goal is to help speed time to diagnosis and reduce chances of diagnostic error. To get started, browse our genetic diseases or find diseases by symptoms. Visit their website
Limited Mobility Solutions For many of us, using voice commands to turn on lights or change channels on our TV is a luxury, but for those with limited mobility, voice activated solutions such as these can be life changing, both for the individual as well as their caregivers. Visit their website
U.S. Pain Foundation U.S. Pain is committed to improving the lives of people with pain by challenging social stigma and breaking down barriers to care. Visit their website