Strengthening EDS ConnectionsOur missions is to provide support and resources to patients and medical professionals affected by Ehlers-Danlos Syndromes (EDS) and related conditions via education and research.Visit their website
EDS AwarenessWe help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more…Visit their website
Cure Rare DiseaseDeveloping customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures.Visit their website
Rare Village FoundationOur goal is to empower families as treatment advocates by providing education, connections and tools to help them simplify their rare disease treatment work.Visit their website
Myasthenia Gravis Foundation Of AmericaOur missions include: creating a robust resource network to improve access and enhance lives for those with MG, supporting promising research and improving time to diagnosis and care for MG.Visit their website
Conquer MGWe provide patient support and education, raise MG awareness, provide education for health care professionals, and raise funds for vital medical research.Visit their website
National Organization for Rare DisordersNORD, along with its 300+ patient organization members, is committed to the identification and cure of rare disorders through programs of education, advocacy, and patient services.Visit their website
The Ehlers-Danlos SocietyWe are proudly working to provide global learning conferences, collaborative research and education initiatives, advocacy, community-building, and care for the EDS and HSD population.Visit their website
Patient WorthyThrough education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.Visit their website
Think GeneticOur goal is to help speed time to diagnosis and reduce chances of diagnostic error. To get started, browse our genetic diseases or find diseases by symptoms.Visit their website
Limited Mobility SolutionsFor many of us, using voice commands to turn on lights or change channels on our TV is a luxury, but for those with limited mobility, voice activated solutions such as these can be life changing, both for the individual as well as their caregivers.Visit their website
U.S. Pain FoundationU.S. Pain is committed to improving the lives of people with pain by challenging social stigma and breaking down barriers to care.Visit their website
Strengthening EDS ConnectionsOur missions is to provide support and resources to patients and medical professionals affected by Ehlers-Danlos Syndromes (EDS) and related conditions via education and research.Visit their website
EDS AwarenessWe help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more…Visit their website
Cure Rare DiseaseDeveloping customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures.Visit their website
Rare Village FoundationOur goal is to empower families as treatment advocates by providing education, connections and tools to help them simplify their rare disease treatment work.Visit their website
Myasthenia Gravis Foundation Of AmericaOur missions include: creating a robust resource network to improve access and enhance lives for those with MG, supporting promising research and improving time to diagnosis and care for MG.Visit their website
Conquer MGWe provide patient support and education, raise MG awareness, provide education for health care professionals, and raise funds for vital medical research.Visit their website
National Organization for Rare DisordersNORD, along with its 300+ patient organization members, is committed to the identification and cure of rare disorders through programs of education, advocacy, and patient services.Visit their website
The Ehlers-Danlos SocietyWe are proudly working to provide global learning conferences, collaborative research and education initiatives, advocacy, community-building, and care for the EDS and HSD population.Visit their website
Patient WorthyThrough education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.Visit their website
Think GeneticOur goal is to help speed time to diagnosis and reduce chances of diagnostic error. To get started, browse our genetic diseases or find diseases by symptoms.Visit their website
Limited Mobility SolutionsFor many of us, using voice commands to turn on lights or change channels on our TV is a luxury, but for those with limited mobility, voice activated solutions such as these can be life changing, both for the individual as well as their caregivers.Visit their website
U.S. Pain FoundationU.S. Pain is committed to improving the lives of people with pain by challenging social stigma and breaking down barriers to care.Visit their website