Other Resources for Rare Disease Support Pain Management

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Other Resources

Rare Diseases

• NORD (National Organization for Rare Disorders) Rare Disease Database • GARD (Genetic and Rare Diseases Information Center) • Rare Diseases International • National Human Genome Research Institute Rare Diseases FAQ

Pain Management

• U.S. Pain Foundation • Pain Resource

Myasthenia Gravis

• MG Community from Myasthenia Gravis Foundation of America • MG United

Elhers-Danlos Syndrome

• Community Resources from The Ehlers-Danlos Society • The Mighty’s Guide to Ehlers-Danlos Syndrome Resources • I think I Might have EDS (TikTok)

Mesothelioma Doctors

• Mesothelioma is a rare and complex disease that requires expert medical care. Thankfully, experienced mesothelioma doctors can create treatment plans to help patients live longer. Patients should choose a mesothelioma specialist based on the doctor’s experience with their mesothelioma type, stage, cell type, and prognosis. Learn more about finding a top mesothelioma specialist near you. • Mesothelioma in Women